Cystic Fibrosis (CF) - Adult CPC

For referrals and/or clinical advice, please telephone the Royal Adelaide Hospital Cystic Fibrosis Service

Central Adelaide Local Health Network

• Cystic Fibrosis Service: (08) 7074 0801 or 0466 488 116, 8:00 am to 4:30 pm. After hours, call the switchboard (08) 7074 0000 and request the cystic fibrosis doctor. 

Category 1 (appointment clinically indicated within 30 days)

• all potential new diagnoses of CF

Category 2 (appointment clinically indicated within 90 days)

• nil 

Category 3 (appointment clinically indicated within 365 days)

• nil 

Clinical management advice

Please do not defer referral or discussion of a potential Cystic Fibrosis (CF) patient pending results.

For any clinical management advice, please contact the Royal Adelaide Hospital CF Service, see ‘Contacts for Clinical Advice’.

Clinical resources

• Royal Australian College of General Practitioners (RACGP) – Cystic Fibrosis
• Cystic Fibrosis Australia - Standards of Cystic Fibrosis Care guidelines
• SA Health - Cystic Fibrosis for health professionals

Consumer resources

• Cystic Fibrosis Australia
• Cystic Fibrosis South Australia
• Cystic Fibrosis Foundation
• SA Health - Cystic Fibrosis
• CF Physio

Reason for request

• to establish a diagnosis
• for treatment or intervention
• for advice and management
• for specialist to take over management
• for a specified test/investigation the General Practitioner cannot order
• for other reason (e.g. rapidly accelerating disease progression)
• transfer of care from another tertiary service
• clinical judgement indicates a referral for specialist review is necessary.

Patient demographic details

• full name, including aliases
• date of birth
• residential and postal address
• telephone contact number/s – home, mobile and alternative
• Medicare number, where eligible
• name of the parent or caregiver, if appropriate
• preferred language and interpreter requirements
• identifies as Aboriginal and/or Torres Strait Islander

Clinical modifiers

• impact on employment
• impact on education
• impact on home
• impact on activities of daily living
• impact on ability to care for others
• impact on personal frailty or safety
• identifies as Aboriginal and/or Torres Strait Islander

Other relevant information

• Willingness to have surgery, where surgery is a likely intervention.
• Choice to be treated as a public or private patient.
• Compensable status, e.g. DVA, Work Cover, Motor Vehicle Insurance, etc.
• Relevant social history, including identifying if you feel your patient is from a vulnerable population, under guardianship/out-of-home care arrangements and/or requires a third party to receive correspondence on their behalf.
• Triage of a specialist outpatient referral is based on clinical decision making to allocate an appropriate urgency categorisation.
  
• Where appropriate and where available, the referral may be streamed to an associated public allied health and/or nursing service. Access to some specific services may include initial assessment and management by associated public allied health and/or nursing, which may either facilitate or negate the need to see the public medical specialist.
• A change in patient circumstance (such as condition deteriorating or pregnancy) may affect the urgency categorisation and should be communicated as soon as possible.
• All new referrals will be triaged by a consultant and appointment times scheduled according to clinical urgency.